I am pasting some earlier posts I wrote for my myspace blog, in keeping with the journey. They are from those volatile prenatal diagnosis and Norwood days. I am re-posting them here because they are a play-by-play account from that time--the hindsight and retrospection continues to evolve. We have come such a long way since then! Looking back on it, those days were filled with a combination of worry and hope, but I do remember them now as a time of joy and togetherness...and of Herculean effort!
August 26, 2008
Yay, so, Kieran MOVED to the 4th floor today!!!!! Whoohoo! He had his echocardiogram today and they said everything looks SPECTACULAR! Oh man. I am so exhausted!!!!!!!!!!!!!!! The time can really fly spending time with him...before you know it, oh, 19 hrs have flown by...but then when you leave the hospital (like now), it all catches up with you. Well, I am super-excited he is one step closer to home, but the PICU nurses really did grow on me, and I actually found myself getting a little emotional saying goodbye to them today Maybe it can partially be chalked up to post-partum hormones, but really, they took such good care of Kieran and really went out of their way to interact with him and make him comfortable. Up on 4th, we'll be transitioning to home care. That means me and Shawn will get a lot of training before we can take him home--ie, pediatric CPR, how to weigh him and monitor his oxygen, mix his special milk/high calorie formula combo, and basically whatever else we have to do to keep him healthy at home. It's a little overwhelming. He "has" to be woken up every 3 hrs to eat since he has so much catching up to do--so guess who has to wake up too?? Mom and Dad! Thus all the exhaustion.
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